Yesterday Noah had his pre-op appt at Children's. It was a busy day and Noah did well considering the circumstances.
I was told not to feed him after 5am since they planned on doing a sedated echo (this was a great option since they take so long). So he ate at 5am and we were at the hospital by 8am. First off we had to strip him down to weigh and measure him. This is when he realized he was hungry. At this point he had patches stuck to each arm with numming medicine and a bag stuck to him to catch his urine. The rest of the morning he was in his diaper only for all the tests. We then had to get his chest X-rayed and blood drawn. He did not appreciate either and did not like us taking the patches off his arms either. He would fall asleep between each procedure only to be have us wake him up for another uncomfortable procedure. They then fed him yucky tasting medicine that thankfully made him fall asleep since he was not happy with us at all. They did the echo on him and I was able to feed him before they did the EKG. All confirmed Tetralogy once again. Then we met with the nurse practitioner and the surgeon. Both were very positive, personable, and helped educate us on what to expect on Monday. It was difficult to listen to all the details, but it was important to know what was going to happen to our baby.
Noah was a trouper and only got upset when he had good reason. He even tried to smile between tears at times. I don't think I will ever be 'ready' for him to have heart surgery, but I guess we are prepared to deal with it. This weekend we are going to hold him, love on him, and enjoy every second! He is surrounded by his parents and grandparents so he is getting plenty spoiled!
Thanks for all the prayers. I will post updates on here and facebook as I can next week. The main thing I do know is that God is always good.